My sister sent me an email with a link today. It was the first thing I saw when I cranked up my computer, because I always go to email first and to stuff from my sisters before anything else. I clicked on the link and it opened a two page document that was in very small print. As I started today with only half my allotment of spoons (I hope you will understand this analogy later), I was tempted to just close it and read it later if I got around to it. But something made me start reading and before I was half-way through the first page I knew I had to read the whole thing, and read it right that very minute.
I do not have Lupus; I have SCDS. These two issues are completely different but share a number of symptoms. This short little two-page post is the best description I could ever imagine of what it is like to live with something that controls every aspect of your daily life. I am posting the link here. I hope you will take the time to read it. I don't look like I'm disabled. In the future, this is how I will explain who I am now, why I do or don't do the things I do or don't do, and how I try to deal with the cards I've been dealt.
But You Don't Look Sick
I do not have Lupus; I have SCDS. These two issues are completely different but share a number of symptoms. This short little two-page post is the best description I could ever imagine of what it is like to live with something that controls every aspect of your daily life. I am posting the link here. I hope you will take the time to read it. I don't look like I'm disabled. In the future, this is how I will explain who I am now, why I do or don't do the things I do or don't do, and how I try to deal with the cards I've been dealt.
But You Don't Look Sick
Thank you Carla, One of my friends from high school(her brother dated my sister) he was diagnosed with MS this week. My computer has been down for almost 2 weeks and I just got it back. This theory about the spoons will come in handy and I now understand a little more about how your day might go. I am hoping it will come in handy for him too. Although the conditions might be different they do effect how you go about your day.
ReplyDeleteok- Wow- great article thanks
ReplyDeleteWendy